Transition in care for women with sex variation is an emerging area of both clinical practice and research. What processes are useful and how transition is developed and adult care sustained is complex for both individuals and providers.  Current evidence suggest that more than half of young people with complex care histories will ‘drop out’ of follow up medical care. The reasons are varied and include;

  • difficulty finding a provider,
  • building relationship and trust with a new provider,
  • changes in life circumstance or moving to new places and
  • building self-management strategy.  

Work is ongoing and we would like to hear from you if you have an experience you wish to share about your transition in care, at any stage of your life i.e., leaving pediatric care to early-to-mid adult life, older adult services. Please consider contacting with the subject line “TRANSITION.”

Click here to read an article on the Women’s Health Research Institute titled “A conversation with the DSD Transitions research team | Digital Health Week 2019”